Wednesday night I attended the MoveOn and Democracy for America Vigil for health care. Since I don´t like to go to a place like Centennial Park alone at night, my schizophrenic brother Ernie accompanied me. He was glad to ride along with his cell phone to keep me safe and to hold a sign and help me keep my candles lit.
There were about 100 people stretched out on either side of the low stone wall in front of the park. We had young people there, praise be, since so many young people seem to think health care is not their problem. Most stayed long enough to find out different. We held out signs and our candles prominently along West End, a major thoroughfare. Passers by who agreed honked and waved, and we yelled back at them. Across West End, there were three anti-health care demonstrators with two signs mentioning socialism. They kept pretty quiet in the face of our much larger numbers. Several AFL-CIO officers were with us, as well as a Bridgestone-Firestone worker who took the opportunity to ask us to sign a petition against the current Chinese flooding of the market with cheap tires. I was glad to do this, and Ernie joined in as well. Tire making is a filthy, dirty business, and management is not always attuned to the legitimate needs of workers. The last thing they need is to be undercut by imports.
Then came the health care stories. Perhaps the most impressive thing about them was that the people who gave them, no longer young or physically ill, used a kitchen stepstool to climb to the top of the wall so we could see and hear them. One was a self-employed lady lawyer who had had to buy a cheaper private insurance plan than her original one which cost $1,700 a month. Now she has no mental health coverage and only generic drug coverage. Thus one of her neccessary prescriptions cost $380 some for 30 days supply. Going online, she found she could obtain the same thing from Canada for $67.84 for 90 days supply. - The hate talkers tell us only the lazy unemployed are without insurance, but here is a woman who has worked in a highly skilled position all her adult life.
The next speaker broke my heart, for she is young and a 9/11 survivor. We kill thousands in her name, but nobody is willing to help her survive with her troublesome lung ailment. Her husband was fired because of the effects of her huge medical expenses on the company´s health insurance rates. Now they are in Nashville, she working part time at home and he working 2 jobs to make ends meet. They do not have health insurance. Where are the Christians? Where is decency?
The last speaker didn´t talk about himself. He spoke for his brother-in-law, a 35 year old who had been laid off and lost his health insurance that same day. The young man had some abdominal pain he thought must be a hernia, but he could not afford to go to a doctor. Within a year he was dead of cancer.
I completely wore myself out standing, waving, and talking at this event. I was glad to have Thursday off work to rest. Getting older does that to a person. But going and showing the Medical Industrial Complex we won´t be put off by the hate and shock talkers was the most important thing I could do with my time.
Blanche Peay Lillie was Zack Peay´s surviving daughter. She was into middle age when she divorced her husband, but for her that was just a beginning. She began nurse´s training and eventually became head nurse at a large hospital. I remember her as an old woman and never realized she was as beautiful as in this picture.
Admiral Carlton Benton Jones is the grandson of Samuela Peay Jones, Almira´s younger sister. Almire didn´t approve of her marriage to Henry Jones and wouldn´t come into the parlor for the wedding. Admiral Jones is retired and , to the best of my knowledge, living in Denver. We were able to send him his grandmother´s Bible.
Right now I am working all I can on Health Care Reforn. A government option is needed to provide GROUP rates for people who can´t get into a group at work. Group rates are the key. Individual health policies are hardly worth the paper they are written on because one little claim can wipe out your year´s premium. That´s no way to make money, and these companies want to make plenty of it.
I implore everyone not to listen to the scare ads. Yes, you will pay for health care - but you´re doing that right now and sometimes not even getting the health care! The government will NOT tell you what doctor to see, when you can see one, or what tests or operations you can have. Private health insurers are doing just that - they don´t precisely say you can´t have a test; they just say they won´t pay for it. According to a recent article in FORBES magazine, these companies work to sign up healthy people and drop those who really need medical care. They don´t care about our health - it´s about making money.
A good part of my concern is that PatrickXFCE, Fightingale, and their children have good health care throughout their lives. I´m nearing the age for medicare, but I plan to work as long as possible. For one thing, I know I have glaucoma drops in my future, and that´s expensive medicine. Please check out the health care stories the President has gathered on the site ORGANIZING FOR AMERICA.
I´m mighty irritated you went and shot yourself that way. Not all the way mad, mind, because I know you have carried heavy burdens for a lont time. Jerry and I both (yes, I called him and was the one to give him the news) felt you were finally turning a corner after a year that had been full of emotional hardship and danger. Mama and Daddy were both concerned you would do this when Gary Bird died, and I was proud of how you managed to overcome that and several other pet deaths, plus continual discouraging circumstances.
How do I know you´re in heaven? Not like I could prove on your favorite science shows, of course, because nobody really understands the afterlife. I don´t think we´re supposed to. But I know how you worked out a personal relationship with God despite the fact that many who call themselves God´s people denounce you for being gay. I know about your Bible and historical study, the rock pile in your yard that is really a pile of prayers, and the tenderness and concern you´ve shown for your friends and for all animals. It is a trait of our family to find close personal friendships with animals because human relationships have been so cruel and hard on us all.
I would never have thought about the animal friendship thing if Mama´s psychologist hadn´t written about it in a book for which she was one of the models. It´s true, though. You have both the best and the worst of the Allison family in you - the great creativity, fine humor, and caring for animals and also the hot, touchy temper and tendency to rant - plus the suicide, of course.
You wound yourself thoroughly into my heart and my parents´ too, once we met you and began to correspond. You changed their thinking, you know. Mama had always been sort of passively negative about gays and had never thought of them as real people. Daddy had always been aware of the gay men in the work force and had worked with them normally. His thing was always ¨so long as you don´t do it with my wife you can do it with frogs for all I care¨. You made him see the reality of discrimination against GLBT people, and he was a member of PFLAG for several years. Both of them enjoyed your letter tapes and cartoons, and both were greatly concerned about the hard life you´ve had.
Now at least you are whole. That severe dyslexia - especially at a time when it was not diagnosed or understood - was a horrible thing to happen to someone of your ability and temperament. I was proud to type up your varied stories and get them out to a modest audience. I know you´ve never considered being gay a disability and enjoyed your life in ¨the fruit bowl¨, as you called it. Still, it was something that made you even more of an unacceptable outsider in many circles. You found some sort of peace or at least tolerance with both parents before they died, and I´m glad of that. It says something that the son they most rejected came back into the desert to look after them.
I´m glad you had Pat listed somewhere as your next of kin to contact. She was on vacation, you know, when the coroner contacted her office. It wasn´t until the next night she found time to call me; she had already arranged the cremation and scattering of ashes just like you wanted. Jerry was lamenting to me that he and Caltha never got out to see you. They were fully meaning to until that rotator cuff injury got him down. I´ve no idea how we are going to contact all the people who cared for you - Vi, and Morning Wolf, and AJ and Ken.
Yes, I´m going to work to stay in touch with Pat and Jerry. I´m working to preserve the storehouse of memories in my care and pass it on down. I´ve told Larry just how much you were concerned about Josh´s Asberger´s and how he could get a good education and get on in life. I´ll sure miss talking politics with you - and European royalty, and world history, and my own writing and drawing. You were a Best Friend to me at a time when I needed one. Now be happy and rejoin old friends.
I wrote this in response to an article on AlterNet.
Andrew M. Weiss suggests that childhood mental disorders are largely a fabrication of Big Pharma, since the first diagnostic manual published by American psychiatrists in 1952 lists only one childhood disorder. - To hell with the 1952 manual. I was one of those disturbed kids. I was there.
In fact, mental or emotional disorders have a long history in my family. My mother, born in 1920, suffered what we now know as Clinical Depression while in her teens. She also had an impossible to please mother and a drunken father. Several older members of my grandmother´s family had either been carted off to an institution or committed suicide. Mama knew she needed help by the time I was born in 1945, but institutionalization or shock treatments (remember those?) were the only treatment available.
Like any child, I was upset by my mother´s emotional problems and sometimes irrational behavior. What really put the tin lid on things was the birth of my brother in 1952. Childlike, I realized rather early something was ¨wrong¨ with him without understanding what or why. Gradually, my feelings of frustration, anger, and downright hatred made me almost suicidal. Luckily, my pediatrician recognized my condition and arranged affordable care with one of the practicing psychologists in the area. He prescribed a sedative until my condition stabilized.
Meanwhile, there was nothing available for my haggard mother and increasingly out of control brother, who had hallucinations among other things. Finally a UGF funded mental health center with a sliding fee scale was established in my area. My parents attended parent groups, and my brother finally at age 7 got a diagnosis - childhood schizophrenia. We all had various types of individual and group therapy to help us handle the situation, but only common or garden variety tranquilizers were readily available then.
One thing we all quickly discovered was that we were by no means the only desperate family. My folks met college professors and people from the projects to discuss their troubled kids. My teenage therapy group never lacked for members of all social conditions. Oh, yes, the troubles were there alright.
In the late sixties, my brother spent 18 months in the adolescent unit of the local mental hospital. With this treatment and some medication, he became able to live in the community and graduate from high school.
Now, about all those side effects like tardive diskinesia - my brother took Mellaril for 35 years and did have some mild symptoms. Our family doctor, operating from a clinic allergic to possible liability, cut back his dosage. This resulted in my brother driving to another state, throwing his identification in the trash, and deliberately shop lifting to get himself arrested. I took off from work and drove Mama over there to get him out. Yeah, worked out great, didn´t it?
No, I don´t trust Big Pharma, but they didn´t invent emotional illnesses in children. Some, like schizophrenia and autism, are physically based. Autism IS on the rise, quite possibly because of industrial pollutants known to affect the nervous system.
Children suffered mental disorders in the fifties. I was there. I was one of them.
A significant school population will be adversely affected by the proposed education policy of rigid standards. This group is autistic children, now one in every 150 births, most of them male. Judging by the public reaction to Michael Savage´s radio rant about autism, most people now believe in the validity of the illness - they just don´t want to deal with it.
Charter schools, even those run by charities, do not want to be bothered and can choose not to be bothered. My autistic grandson was sent packing back to his zoned public school despite beyond grade level reading and math skills. The No Child Left Behind provision that all test scores reflect on the whole school makes this situation infinitely worse.
Please find a way to fund one public school (or one section of a larger campus) to meet the needs of this unfortunately growing population and those with other mental health and cognitive problems. Their test scores should not be counted with those of normal children. Private groups would undoubtedly provide extra funds so long as they do not actually have to administer the program.
Educating these children is a sound investment. Some, like Temple Grandin who designed most of the cattle handling equipment in this country, are geniuses. Most can become productive and taxpaying citizens at some level. Above all, they are vulnerable human beings who shouldn´t be sacrificed on the altar of Standards.
I´ve been extremely distressed by the problems Fightingale and PatrickXFCE have been discussing in their blogs. In some ways, it´s deja vu, since I was reared in a fundamentalist church and had a schizophrenic brother. Ernie was born in 1952, and the whole family attended the same church until I married in 1967. I´ve been thinking back on how we managed.
In the first place, it´s inaccurate to imply that Ernie was the only family member with problems. Mama later told me she was aware at the time that she had extensive emotional problems, but back then hospitalization (and possibly shock treatments) was the only answer. She hung on, not wanting me reared by either of my grandmothers. Meanwhile, I was feeling frequent and inconsistent demands from most of the adults in my life, save only Daddy, who tried to keep a lid on things. My natural emotions conflicted with the straightjacket of fundamentalist teaching, and I really went into a nose dive when I realized something was the matter with Ernie. I was just seven years older than he and quicker to note unusual behavior than the already conflicted adults. What was the matter? Had I somehow caused it?
Thank God my Presbyterian pediatrician recommended an agnostic psychologist who would see me at a reasonable fee. He also prescribed a sedative and advised Daddy that someone should sit with me until I went to sleep. I saw Dr. Kirk for about 18 months or two years, I reckon, and of course she talked to my parents.
Of course, mental health problems weren´t even recognized by fundamentalists in those days. Everything could be solved by prayer, and some even believed in faith healers. I realized by the time I was in sixth grade that the fundamentalist religion I firmly believed in didn´t connect with real life. Still, I believed - and was encouraged to believe - I needed a religion, imperfect or not. I simply developed the habit of keeping quiet about things in my real life the church folks would deny had happened or tell me I mustn´t feel that way about. A distance grew between me and the church folk, all the more so as my parents were social liberals who believed (and told people) some of the things taught by the church were wrong.
As Ernie´s schizophrenia really became manifest, there were complaints about his behavior by church members from time to time. Their darling young ones delighted in picking on him; he might as well have had a ¨victim¨ sign painted on him. I am happy to relate there were always two or three ladies in the church who would stick up for him. Mama was a sharp-tongued fighter, and nobody wanted to tangle with her where Ernie was concerned.
We were blessed with the friendship of two couples who have always been on our side. Both men were song leaders, and they and their wives were accepting of problem people. They would sit around and talk unperturbed even when Ernie was thrusting stuffed animals into everyone´s laps and otherwise making things difficult. One of the men even invited Daddy to teach Sunday School with him, an important turning point in his and several other people´s lives.
The constant emotional stresses weighed heavily on me as a teen, and my attitudes toward church and everything else began to change. I simply wasn´t in the same world as my contemporaries, dating and all that stuff. I grabbed onto what I could do - piano lessons, singing, reading and scholarship, sewing and embroidering. There were daytime friends at school, but not at church except among my parents´ contemporaries. I didn´t care if people didn´t like me, so long as they realized I was smart and could sing.
An amazing thing happened as we went through the years toughing it out at church. Gradually at first, but then in increasing numbers, people at church who found themselves with family problems came to my parents. Mama was very socially active and often initiated contact when she realized there was a problem. Daddy was the perfect, gentle listener who soothed and listened. Once his friends at the office held the fort (and their peace) while he conversed for two hours with a lady from Sunday School whose son had a drug problem. For a number of years, they actually made a difference within the confines of the fundamentalist church.
It´s no wonder the rigid standardized tests our kids are taught nowadays skimp on history. Most Americans seem to have the hazy idea that we have always fought for right and justice just like the cartoon superheros. This is fortunate for politicians, who can rewrite and twist our true history to meet their own ends.
I well remember a late elementary school history book that announced almost apologetically that Captain John Smith was ´a queer mixture of good and bad´. This was before the word ´queer´ was used as it is today and merely indicated he got up to things the history book didn´t want us to know about. We did learn that people came here from debtors´ prisons and to avoid hanging, but the assumption was that they´d had a run of hard luck or been persecuted.
Being into opera taught me a lot I didn´t learn in school. For instance, there was this 17th century French rhyme that went ¨To people Mississippi, that noble colony/The crooks and whores of Paris are brought commercially.¨ It went on to urge listeners to buy stock in this business, since the supply would never run out.
The more I have read the more I have come to realize that the folks who went out and settled new lands were often either running ahead of the law or exhibited anti-social behaviors that would worry us today. Their dealings with the Native Americans, which we used to be taught as hero stories and are now glossed over as Manifest Destiny, take on a darker hue when read with adult eyes.
I have thought sometimes of writing for my grandchildren the rather exciting history of how Nashville was founded, but I am always stumped by the best way to explain our ancestors´ behavior and the cultural clashes. The folks who came to Nashville naturally thought the area uninhabited - there wasn´t a settlement within 200 miles. What they didn´t realize was that the Cherokee, Chickasaw, and Choctaw, all stuck in hunter-gatherer mode, used the whole area as hunting grounds. These worthies were also confused by us. Europeans had advanced tools and firepower. Some natives wanted to trade; others saw us only as a danger. Some of our ancestors likewise wanted to trade with the natives who were so very good with animal hides. Some groups made treaties, only to be massacred by other groups who objected to the aforesaid treaties. The white folks who were willing to rough it were rough and ready people. Some leaders had at least a rudimentary knowledge of law and fairness, but we didn´t get Thomas Jeffersons and James Madisons this far west.
Many of the folks who founded the Western states were even rougher. There were religious groups and folks like Laura Ingalls Wilder´s family, but we honestly might not want to know too much about some of the folks who roamed around and slipped into Indian Territory when things got too rough. Some actually did heroic things and helped establish the law, but reading about them I was reminded of Pappy Boyngton´s statement ¨Show me a hero and I´ll show you a bum¨. Rudyard Kipling, traveling through the West just before the 20th century, wrote of all the bloodcurdling stories he was told about gunfights. The storyteller invariably ended the tale, ¨And that´s the kind of man he was¨. The Englishman was shocked - and this was Rudyard Kipling, who interviewed lowly British soldiers who related similar tales of killing Pashtuns in line of duty.
I was reminded of all of this reading a recent McCamy Tailor post on Democratic Underground. Tailor suggested this background helped produce the extraordinary financial crimes of our day. It´s worth thinking about, especially since only the United States can precipitate a global meltdown.
I spent much of the morning at the laundromat and therefore got to see quite a lot of the Rose Bowl Parade on Spanish language television. It´s been more than twenty years since I was involved with marching bands, and I was glad to see them again, even sporatically. The volume is always turned way down at the laundromat, but I saw some familiar things. At least some of the bands were high school kids, and all of them were working hard. Since this was street marching, I was not able to see how field shows have changed. I did observe a wide variety of auxiliaries and band head wear. These kids are the best of the best, of course, and have the money of their communities behind them. I couldn´t read any signs but sincerely hope at least some of these were public school groups. One band wore Roman helmets, and one had bird shaped helmets that looked to be Aztec or South American. The auxiliaries with their flags (and artificial flowers in one case) represented Native Americans and Hispanics, with lovely colors and costumes. I felt sorry for those who had to march behind the many animals dispersed throughout the parade- horses and burros, some with riders doing tricks.
The floats were kind of neat, but most of my attention was with the bands. These kids have worked for hours as a team both to learn the instrument and marching and to raise the money to go. A good band show these days takes a fair amount of money, and some would say it could be spent better, especially as bands are not ¨revenue producing¨. But band is both academic subject and character builder. When schools are busy teaching the test, this is one class where they can learn the practical, meaningful values of life like working together and accepting and celebrating each other´s differences and heritages. If you consider this extravagance, it is a shared extravagance with many purposes, unlike many of the things people spend money on.
Folks, drop off a little money when you see a band fundraiser, especially a public school one. Here are kids learning character and staying out of trouble. Girls can achieve just as much as boys, and kids with disabilities like asthma and diabetes can take part where they wouldn´t be wanted in sports. I´ve actually seen local bands accommodate a wheelchair bound student. Help the kids buy their flags and equipment. It may be the best thing you can do for them.
Every time I hear ¨I´ll Be Home for Christmas¨ I remember Daddy. On Christmas Eve 1943 he was walking guard duty outside the mess hall in Shreveport, Louisiana. It was his 24th birthday, and they kept playing that song over and over in the mess hall. As he walked his lonely rounds, a car came up bearing the officer on duty. ¨Soldier, where is the nearest public telephone?¨ ¨I don´t know, sir.¨ ¨Well, find out by the time I come back.¨ Once the car left, Daddy turned around and discovered he was standing in front of the telephone. That night was part of his progress of learning to live in the adult world, and he always remembered the loneliness of it.
Not that he really loved Christmas, mind. The last letter he wrote to a friend was about his childhood Christmas memories. ¨That was the day I always found Mother crying in the pantry.¨ Grandad always said something sarcastic, no matter what she got him, but that wasn´t the only stressor of the day. Her indigent mother lived with them, as was the custom, but Grandad made it clear the rest of her family wasn´t welcome in the house. They did not contribute at all to the old lady´s expenses; he was bearing the entire burden. Also, the holidays meant his older sister and her daughter always came. He was just a wee bit scared of Aunt Blanche and deferred to her in all things. Nobody thought what effect all this was having on the child in the house. They didn´t in those days.
Mama´s Christmases were mixed also. She and her younger sister always enjoyed decorating and singing carols during the season, and the family all went to the Gobel grandparents´ home for Christmas. Her Granny Gobel reveled in decorating and everything colorful, and there were always nice presents. By German custom brought from the Old World, the men always ate at the First Table and took their time about it. The women had the Second Table, and the children the Third. There was always enough to eat, but the kids got very impatient. All the Gobel family that was in town was present and, as with the German culture, there was much drinking. My grandfather always got drunk, not that that was anything unusual. Strangely enough, in all the years he drank and drove he was never stopped for a traffic offense. Knowing himself somewhat impaired, he drove like a turtle, and he had a strong constitution. Mama said the absolute worst part of Christmas was when they got home and had to sit in their coats until their parents could get the fires going.
My own Christmases were equally mixed. Once we got in a house big enough, we were more or less obligated to have relatives over every year, and it was never pleasant. Also, since the Church of Christ at that time forbade it, we could never celebrate Christmas as a religious holiday. We did have fun setting up the tree and sending out Christmas cards.
Enjoy what you can at Christmas. Just never expect it to be perfect.

on A Vigil for Health Care